Aid on Spreadsheets

Cerebral Palsy in Uganda: Epidemiology, risk factors and intervention

The long term goal of this multidisciplinary project is to develop a Community Based Rehabilitation Program for Cerebral Palsy (CP) in Uganda. Neurodevelopmental disorders have previously been neglected due to more challenging health problems, e.g., under 5 mortality. However, CP is a common cause of movement disability and it has a devastating impact on the child and its family affecting occupational activities, social relationships, psychological well-being and financial conditions. We plan to perform a randomized controlled study comparing clusters of villages with the community based program to villages maintaining the ordinary health services. However, before commencing the intervention we need to understand the panorama of CP in Uganda. There is little information available about the epidemiology of CP in Sub-Saharan Africa. We are currently studying a hospital cohort at Mulago University Hospital in Kampala, but there are obvious limitations. Therefore, we plan to perform a population-based epidemiology study on CP at the Iganga DSS, in which we will explore the prevalence, type of CP, severity level, associated risk factors as well as available rehabilitative and therapeutic services. The subsequent intervention study will be performed on this cohort of children. The information and the results from this project will be useful for advocacy purposes and aiding policy makers allocate adequate resources for children with neurodevelopmental disabilities.

Project ID

SE-0-SE-29-2013-6578-285-12182

Activity status

2 - Implementation

Aid type

D02 - Other technical assistance

% to Uganda

100.00

Organisations

Funding

Sweden

Extending

The Swedish Research Council

Implementing

Karolinska Institutet

CRS code	%
Medical research (12182)	100.0